Just Diagnosed - Next Step
 

West Midlands Support Group

Haemochromatosis Society UK 

Become informed - please use the links from this page.

Get in touch with fellow sufferers, their experience can make yours easier.

Come along to the next meeting of the West Midlands Group

Ask questions of the medical professionals with whom you deal and don't necessarily accept the first answer.

Seek genetic counselling so that you can grasp the full implications for yourself and your family

Join the the UK Haemochromatosis Society

 

The Haemochromatosis West Midlands Support Group has been set up to help fill a gap in the provision of care to those with  the illness within this area. We hope to:

act as a focus of support for those sufferers and their carers;

promote awareness generally and importantly among medical professionals such as GPs;

act as a forum which will allow for the development of better understanding between the medical establishment and those suffering with this complex illness;

act in conjunction with other groups locally, nationally and internationally to bring about better understanding and care in relation to Haemochromatosis.

The UK Society operates a help line for people with concerns about the condition and its treatment;


distributes an informative leaflet, handbook and a quarterly newsletter to members;

puts members in contact with other members so as to share their experiences;

maintains a website supplying up to date information about Haemochromatosis and useful links to other sites;

promotes greater knowledge of Haemochromatosis both among doctors and the general public;

supports research into Haemochromatosis and its treatment.

What is Haemochromatosis?

View Video

Next Local Meeting Details
The next meeting of the West Midlands Group will be on:

Next meeting date will be
held on Wednesday 20th October at 7pm

UK Society AGM Details

The next Annual General Meeting will take place in London on 11th June 2011
full details to be released later in the year.

Meetings for 2010 in
May - October - January
at
Kings Norton Golf Club
Meeting Venue
Meeting Agenda


For details of the venue and times etc, please contact the UK Society at
info
@haemochromatosis.org.uk

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